Barbados Association of Endometriosis and P.C.O.S. Questionnaire 2019

Description and Purpose: Endometriosis, Polycystic ovary syndrome (PCOS), Uterine fibroids, Adenomyosis and Painful Periods (Primary Dysmenorrhea) are included in a class diseases or conditions called menstrual disorders. 

You are invited to participate in a research survey designed to understand how symptoms of menstrual disorders impact the daily life of women living in Barbados.

The survey has two primary purposes:

1) to describe and characterize the incidence and impact of symptoms of menstrual health disorders on daily life, and

2) to estimate the direct and indirect costs of managing symptoms among women currently living in Barbados. 

The study involves completing the attached questionnaire.  Your participation will take approximately 15 minutes.

Confidentiality of Your Records: Your privacy is important. We will not ask for your name or other identifying information.  Results of this study may be published. Your individual privacy will be maintained in all published and written data resulting from the study.

The data obtained from you will be combined with data from others in the publication. 

Volunteering to Be Part of this Research Study: If you have read this form and have decided to participate in this project, please understand your participation is voluntary and you have the right to withdraw your consent or discontinue participation at any time without penalty or loss of benefits to which you are otherwise entitled. 

Additionally, you have the right to refuse to answer particular questions.

Questions and Contacts: If you have any questions about this research study, contact Julia Mandeville at: baep2019survey@gmail.com

If you have questions about your rights as a person who is taking part in a research study, you may contact the Cave Hill Research Ethics Committee at 417-4847 or by email at researchethics@cavehill.uwi.edu

Go to survey here: Barbados Association of Endometriosis and P.C.O.S. Questionnaire

Barbados Association of Endometriosis and P.C.O.S. Questionnaire 2019

You are invited to participate in a research survey designed to understand how symptoms of menstrual disorders impact the daily life of women living in Barbados.

The survey has two primary purposes:

1) to describe and characterize the incidence and impact of symptoms of menstrual health disorders on daily life, and

2) to estimate the direct and indirect costs of managing symptoms among women currently living in Barbados. 

The study involves completing the attached questionnaire.  Your participation will take approximately 15 minutes.

Benefits of Being a Part of this Research Study: To be honest, there aren’t any direct benefits to you personally.  However, your responses will help us characterize the rate of these conditions and their impact on healthcare costs, quality of life and work productivity are crucial to the identification and development of opportunities which may improve health outcomes in impacted patients. 

Risks of Being a Part of this Research Study: We do not anticipate any risks to participants greater that what you might experience in everyday life. Items to be considered are the time commitment to the consent and survey completion process and possible anxiety or discomfort discussing the condition(s) and the impact. You are welcome to discuss your thoughts and reactions with us.  If you would like to discuss more private matters, we would facilitate a referral to confidential counseling.

Payment for Participation: You will not be paid for your participation in this study.

Confidentiality of Your Records: Your privacy is important. We will not ask for your name or other identifying information.  Results of this study may be published. Your individual privacy will be maintained in all published and written data resulting from the study.

The data obtained from you will be combined with data from others in the publication. 

Volunteering to Be Part of this Research Study: If you have read this form and have decided to participate in this project, please understand your participation is voluntary and you have the right to withdraw your consent or discontinue participation at any time without penalty or loss of benefits to which you are otherwise entitled. 

Additionally, you have the right to refuse to answer particular questions.

Questions and Contacts: If you have any questions about this research study, contact Julia Mandeville at: baep2019survey@gmail.com

If you have questions about your rights as a person who is taking part in a research study, you may contact the Cave Hill Research Ethics Committee at 417-4847 or by email at researchethics@cavehill.uwi.edu

Go to survey here: Barbados Association of Endometriosis and P.C.O.S. Questionnaire